Family to Family Network - Website List

Utah Parent Center
www.utahparentcenter.org
The mission of the Utah Parent Center (UPC) is to help parents help their children with disabilities to live included, productive lives as members of the community. Visit their website to view a calendar of upcoming events, access important resources and information, sign up to receive the weekly electronic newsletter, and more!

Division of Services for People with Disabilities (DSPD)
http://www.hsdspd.state.ut.us/
DSPD promotes opportunities and provides support for persons with disabilities to lead self-determined lives. Visit this website to: find an office in your region; get information on common questions; learn about service brokers; access educational publications; and more!

National Association for the Dually Diagnosed (NADD)
www.thenadd.org
NADD is the leading North American expert in providing professionals, educators, policymakers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. Their mission is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. Visit their website for information on consultations and trainings, copies of research journals, conference information, and more!

Center for Persons with Disabilities (CPD)
http://www.cpd.usu.edu/
The CPD is Utah’s University Center for Excellence in Developmental Disabilities Education, Research, and Services. Their mission statement is to collaborate with partners to strengthen families and individuals across the lifespan through education, policy, research, and services. Their site features: a map to locate services across the state; news you can use; upcoming events; resource spotlights; a calendar of events; and more.

Centers for Medicare and Medicaid Services
http://www.cms.hhs.gov/
The mission of the Centers for Medicare and Medicaid Services (CMS) is: to ensure effective, up-to-date health care coverage and to promote quality care for beneficiaries. Visit this site to get information about Medicare and Medicaid programs, resources, tools, and much more.

Disability Law Center (DLC)
http://www.disabilitylawcenter.org/
The Disability Law Center is a private non-profit organization designated by the Governor to protect the rights of people with disabilities in Utah. To enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah.

Government Surplus Computers
http://www.hsdspd.state.ut.us/surpluscomputers.htm
Non-profit organizations can request, on behalf of individuals with disabilities currently eligible to receive services from DSPD, access to state surplus computers. Visit this site for more information and details.

Planning for your Special Needs Child
http://www.gnapel.metlife.com/index.cfm
This site will connect you with one of the leading MetDESK (MetLife’s Division of Estate Planning for Special Kids) Specialists in the state of Utah, Gary Napel. He assists families in planning for the financial future of their children or other dependents with special needs.

Salt Lake County Voter Information
https://secure.slco.org/cl/elections/index.cfm?CFID=590243&CFTOKEN=55934331
Salt Lake County is the largest county in the State of Utah serving nearly 500,000 active registered voters throughout the valley. You can visit this website to find up-to-date information before every election and find out who your elected officials are.

Ticket to Work Resources
http://www.yourtickettowork.com/res_contacts
Resources for disability-related information are as diverse as the topic itself. This website features a partial listing of different types of organizations that may be of value to the reader and is in no way exhaustive.

Utah Clicks
https://utahclicks.org/index.cfm?
Utah Clicks helps families find and apply for state programs and services. You can now fill out and complete applications for a variety of Utah programs using this streamlined process. On this website, you can apply for: Baby Watch, Baby Your Baby, Children with Special Health Care Needs (CSHCN), Early Head Start, Head Start, and Medicaid.

Utah Association of Community Services (UACS)
http://www.uacs.org

Utah Kids Listserv
http://groups.yahoo.com/group/utahkids/

Utah’s Medical Home Project
http://medicalhomeportal.org
The Utah Collaborative Medical Home Projects Provide Information and Resources for: Primary Care Physicians and Families providing a Medical Home for children, particularly Children with Special Health Care Needs (CSHCN), and for Pediatric Specialists, other Health Care Providers, Educators, and Community Services collaborating in the care of CSHCN.

Resources

ABLEDATA
http://www.abledata.com/
ABLEDATA provides objective information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. They serve the nation’s disability, rehabilitation, and senior communities. Their site has products, resources, a library, and a consumer forum.

Access Utah Network
http://www.accessut.org/
The purpose of Access Utah Network is to provide statewide information and referral concerning and for people with disabilities. They also provide information about: disability issues; the Americans with Disabilities Act; assistive technology; and a directory of statewide services. They also have a used equipment sales bank – which is available to anyone who is interested in buying or selling used assistive devices.

HalfThePlanet – Children with Disabilities
http://www.halftheplanet.com/sale/planet/brown/recluse/disabled_child.htm
This site features sponsored and related links for living and working with children that are disabled.

National Dissemination Center for Children with Disabilities (NICHCY)
http://www.nichcy.org/
NICHCY provides information to the nation on: disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA; No Child Left Behind; and research-based information on effective practices for children with disabilities. On their website you will find an abundance of information on: specific disabilities; early intervention; special education and related services; research; resources and connections in every state; IEPs; parent materials; disability organizations; professional associations; education rights; transition to adult life; fact sheets; and much more!

Online Parent Supports

iVillage
http://parenting.ivillage.com/customized
iVillage gives you an opportunity to collect online information from other “professional parents” – those that have been there and know exactly what you are going through!

Special Child
http://www.specialchild.com/index.html
This is an online publication dedicated to parents of children with special needs.

National Websites

Americans with Disabilities Act (ADA)
http://ada.gov/
This site has information on the ADA including information and Technical Assistance providing access to Americans with Disabilities Act regulations for businesses and state and local governments.

Epilepsy Foundation
http://www.epilepsyfoundation.org/
The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control, and cure epilepsy through research, education, advocacy, and services. Their website has: news; an e-community, information research and advocacy, an “answer place” and more.

Exceptional Parent Magazine
http://eparent.com/
This website has lots of features similar to the print magazine. It features hyperlinks to great sites and has an excellent list of books about disabilities.

Family Voices
http://www.familyvoices.org/
Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated, and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnership between families and professionals. This site features a map to find your local Family Voices; resources and information on advocating for your child; and lots more.

National Indian Child Welfare Association (NICWA)
http://nicwa.org/
NICWA’s vision is that every Indian child must have access to community-based, culturally appropriate services that help them grow up safe, healthy, and spiritually strong – free from abuse, neglect, sexual exploitation, and the damaging effects of substance abuse.

National Organization for Rare Disorders (NORD)
http://rarediseases.org/
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases. This site maintains three searchable databases and an alphabetical index of disease names.

United Way
http://national.unitedway.org/
United Way is a national network of more than 1,300 locally governed organizations that work to create lasting positive changes in communities and people’s lives. Their mission is to improve lives by mobilizing the caring power of communities. This site will help you find your local United Way.

Autism

Autism Council of Utah
http://www.autismcouncilofutah.org/
The Autism Council of Utah is an independent council working to foster collaboration, communication, and learning among families and agencies. Their aim is to promote access to resources and responsible information for individuals of all ages who have or are affected by autism or related conditions. Their site has calendars of upcoming events, information on autism, resources, treatment and public school overviews, research information, and more.

Autism Society of America
http://www.autism-society.org/site/PageServer
The mission of the ASA is to improve the lives of all that are affected by autism. Their site is full of articles, resources, information, news, and other autism links.

Developmental, Cognitive, and Intellectual Disabilities

American Association on Intellectual and Developmental Disabilities (AAIDD)
http://www.aamr.org/
AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. Their site features information on jobs, policies, publishing, groups, and events.

Utah Developmental Disabilities Council (UDDC)
http://www.gcpd.org/
The mission of the Utah DD Council is to be the state’s leading source of critical, innovative, and progressive knowledge, advocacy, leadership, and collaboration to enhance the life of individuals with developmental disabilities. This site has a calendar, information on committees, newsletters, and information on the Disability Community Alliance.

Learning Disabilities

LD OnLine
http://www.ldonline.org/
LD OnLine.org is the world’s leading website on learning disabilities and ADHD, serving more than 250,000 parents, teachers, and other professionals each month. They seek to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD. The site features hundreds of helpful articles, monthly columns by noted experts, first person essays, children’s writing and artwork, a comprehensive resource guide, very active forums, and a Yellow Pages referral directory of professionals, schools, and products.

National Center for Learning Disabilities (NCLD)
http://www.ncld.org/
The NCLD works to ensure that the nation’s 15 million children, adolescents, and adults with learning disabilities have every opportunity to succeed in school, work, and life. This site provides essential information to parents, professionals, and individuals with learning disabilities, promotes research and programs to foster effective learning, and advocates to protect and strengthen educational rights and opportunities.

Cerebral Palsy

United Cerebral Palsy (UCP)
http://www.ucp.org/
UPC’s mission is to advance the independence, productivity, and full citizenship of people with disabilities through an affiliate network. This website has information on: education, employment, health and wellness, housing, parenting and families, products and services, sports and leisure, transportation, travel, news, and information in Spanish.

Accessible Homes and Independent Living

Accessible Homes Foundation (AHF)
http://www.accesshomes.org/
The Accessible Homes Foundation (AHF) promotes the development of accessible homes. Their website features resources, information on builders, homes for rent/sale, and more.

Independent Living Institute (ILI)
http://www.independentliving.org/
The ILI is a policy development center specializing in consumer-driven policies for disabled peoples’ freedom of choice, self-determination, self-respect, and dignity. Their ultimate goal is to promote disabled people’s personal and political power. Towards this end, they provide information, training materials, and develop solutions for services for persons with extensive disabilities. They are experts in designing and implementing direct payment schemes for personal assistance, mainstream taxi, and assistive technology.